Non-Hodgkin's Lymphoma

[HisGrace]

Hi.. My husband just found out that he has NHL T-cell. Does anyone else have this type? He goes for a PET scan on Monday and he will have another biopsy to determine that this is the true diagnosis. I am very scared but I am trying to remain strong. He has been very tired and is having drenching night sweats. He also has a rash on his back and arms. I am trying to stay positive and especially around him. He is so positive and treats this like no big deal. I guess that is good. If anyone can help me with information about the T-Cell NHL that would be so helpful. Any advice would also help!

[UroDoc]

It sounds like you are doing the right thing by supporting your husband, staying positive is good but discussing your fears is also helpful since he maybe hiding his. You can read about NH on this website http://www.oncologychannel.com/nonhodgkins/index.shtml , good luck to the two of you.

[HisGrace]

Thank you! I have read until I don't think I can comprehend anymore! Thanks for the kind words!

[Holly2]

My sister has NHL LTV II 0 is that the same as your husbands. I have no information. She tells me nothing. She refuses all treatment, has taken none and does not plan to. It keeps my stomach in knots because she lives with me and I don't know what to expect. I am just very frustrated.

If I could find someone who has the same thing to tell me about it it would be a great help.

This is sort of rare. The HTV 2 part I mean.

So, if anyone out there knows, pls let me know. Thanks. I am wishing my best to you and your husband.

[HisGrace]

No.. they think my husband has the Non hodgkins Cutaneous T-cell lymhoma. His is only in the skin. THey are treating him with the chemo pill but he has had the night sweats and is very fatigued.. Why is your sister refusing treatment? I am praying for her as well as you. I know how stressful it is to sit back and watch! Let me know what symptoms she is having.


Tracie

[emily.gehrer]

Hey Very Scared,

First of all how is your husband? Has he been going thru Cemo? And second how are you holding up? I am asking these things because we just recieved word on January 2nd that my husband has Non-Hodgkins Lymphoma, and I too am Very Scared......I don't know what to expect and I am very scared for him....He has always been my rock and the strong one in our marriage and I am sooooo scared of how this is going to affect him. He is my life and I can't stand to see him going thru this! I could sure use some kind words and something to go by as to what we will be going thru, we just had the bi-op done Friday and they did a PET Scan today and now we go back to see the Dr. on Wed. and it is only Mon. all this waiting is what is driving me insane.....

Thanks,

Very Scared too

[HisGrace]

Hi.... Believe I know what you are going through!!! I got chills reading your email because that feeling came back to me! My husband has done 10 rounds of the Chemo Pill Methotrexate. He has some good days and some bad days but more good days lately!
Where is your husband's symptoms? My husband's started on his face and for now it is contained to the face. He has to go once a week to get his levels checked (every wednesday) and his lab work. We do go and see the doctor tomorrow morning and he will tell us what the next step is. We are not sure if they are going to continue the pill or try the IV Chemo.
I will tell you that it is going to be over whelming at first! I was kinda numb for about 2 weeks. Slowly things start to become a new normal. I still find myself anxious but that is when I take it to the Lord. I have a strong faith and that is what I am holding on to!
Just know that he will have days that he just doesn't feel well and probably doesn't want to be bothered. When that started happening at first I was really upset but then I realized he is going through something that is attacking his body and so I have had to give him his space. We have also grown closer during this time so enjoy those moments!!
Above all.... take care of you! I was told this but didn't pay much attention to it and now I am really understanding why everyone says that! You get so caught up in his care that you don't even really take care of yourself. I started a workout routine so that I have just that time for myself to get out any frustration or anxiety.... it works wonders!!!!
If you have any questions please please feel free to always ask me!! It is always so nice to have someone to know exactly what you are going through! I will be available anytime you send me a message! I check my email frequently! Even if you just want to vent... I will be here to listen and give you advice. Maybe we can walk through this together!
I want to warn you.... you will have friends who simply don't call anymore... I guess they just don't know what to say. It was really hurtful at first but now I realize that the word Cancer scares people so just beware of that!
Let me know what his symptoms are and if he has any knots? I will be praying for you for your visit on Wednesday! Hang in there....

Tracie:)