Bladder Cancer

[justwaiting5]

I am 36 and have had really odd things going on with my kidney and bladder. I often see small amounts of blood in my urine.I have been tested for the last 4 months and every time the find gross amounts of blood in my urine and say I have reaccurent uti's I have been admitted to the hospital for some of them and for pylonenifritis(kidney inflamation) also I have sever bladder retention and now have to cath myself 3 times a day.My bladder will at times over700cc and I cant ureinate. I saw a urologist this week and suspects bladder cancer and is scheduling some test. What are the test? What next i am scared. Does anyone know if this sounds typical of bladder cancer

[justwaiting5]

After all that was found out on monday i ended up in the er twice due to the fact that I could not urinate the first time they removed 2 liters of urine and as well on the second time. They have now put in a catheter and say its gonna be about two weeks before I can try to have it removed. I just found out that they scheduled my appointments but they are not till febuary three monthes away because they have only one doctor that does these procedures and that I will probably have to deal with this discomfort and problem until they. I am now totally depressed. Doesnt that seem to long to wait? someone please help.

[archrock]

Have you had a CT scan? I don't understand why someone with your symptoms hasn't had a CT scan for bladder cancer as well as a cysto to see inside. I went to doctor immediately after seeing blood in my urine and had operation within 2 weeks afterwards.

[justwaiting5]

thank you for responding. I have not had a ct scan I have a cysto scheduled but not unil feb. which makes no sense to me either. I had the catheter removed today and have another infection and even when I had the cath. in I had very visible tea colored urine and blood clots. I informed my doctor of this and she blamed it on the cath. even though I have had blood in my urine since july. She blames the pain on bladder spasams and has put me on a med for this as well as a numbing medication for my bladder, I dont know what eles to do. I am in alot of discomfort in my kidneys and cry most of the time. It seems like no one cares to help. Any info would be greatly appreciated.

[archrock]

Get another doctor! At least get another opinion. Remember you have to be your own advocate. It is your life on the line.

[justwaiting5]

I am looking into your advise thank you and I will keep you posted.

[cgb]

justwaiting5

What is your current status? Insist on getting the cystoscope ASAP, as it is a great diagnostic tool. I was scoped Wednesday, Jan. 2, and I'm off to surgery this afternoon for a TURB with mitomycin. I had the IVP, which showed nothing, and two urine cytologies (the second of which showed the presence of urothelial carcinoma cells): that was confirmed on Dec. 27. I was then set up for a scope, which, like I said, I just had two days ago. Time is very important, if for no other reason than peace of mind. Really, try to get an earlier cystoscope. Let us know how things work out.

[justwaiting5]

I just got an earlier date but it is not until january 24th, still dealing with the same problems.Dont you think that if the doctor was concerned it would not have taken this long to get the test done? Please let me know your thoughts

[cgb]

justwaiting5:

Are you with an HMO? I know HMOs are usually slower than PP0s or other types of plans. If you're with an HMO you're probably stuck with it's timetable. If you're with a PPO and your PPO provider can't get to you in a timely fashion, consider going out of network. Your PPO will likely pay a good portion of the bill, but you'll have to pay the rest. It may be worth it to get seen as soon as possible.

I had my TURB Friday, January 4. I was just released from the hospital yesterday, January 6. They removed six tumors from my bladder. 25% of my bladder was filled with the tumors. My first symptoms (blood in the urine) were evident in November, just before Thanksgiving. My doctor said my tumors were fast-growing. That's why I'm suggesting you get the cystoscope as soon as you can. I have no idea if the tumors I had were faster growing than most others. But, for no other reason than peace of mind, get the scope soon. Not knowing is one of the worst feelings, especially about cancer.

[justwaiting5]

I dont know what kind of insurance I have I have martins point because my husband is in the military. They are doing the test on january 24th originally they were doing it on feb 28th. I constantly have blood in my urine. Dont know what all these symptoms are but I am hoping that its not bladder cancer