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pheochromocytoma

Post a new topicby livingwith on Sat Aug 18, 2007 8:41 pm


i had a pheo removed from my r.adrenal 5 yrs.ago this nov. it has now came back & spread to my liver, boned, ribs, skull. if anyone has pheo. i would like to hear from them. as of now my dr. is doing nothing. he says it would all be experimental. im not sure what to do....Read the full article

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Re: pheochromocytoma

Post a new topicby UroDoc on Sat Aug 18, 2007 9:58 pm

Mitotane may offer some benefit, you should discus it with your Doctor. Good luck I wish you well.

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Hello Velma...

Post a new topicby Dianita on Fri Dec 14, 2007 3:05 pm


Hello Velma,

You have a pheochromocytoma that split to different organs. Since your doctor is not giving you any medication, I would suggest that you ask him to prescribe you Mitotane, as UroDoctor told you.

I have a pheochromocytoma in my left adrenal. It will be removed sometime in January 2008. I still not know if there is mestastasis. But a CT Scan shows some vertebras "suggestive of mestastasis", and probably I will have a vertebras biopsy done, not sure yet.
I don't know what I'm expecting.

I wish you all the best 1
And, I would like you to let me know how you are doing.

Dianita
Montreal, Canada

Dianita
 
Posts: 28 | Joined: Fri Aug 03, 2007 6:10 pm

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