Our 24 year old daughter was sick for two years before they found out what was wrong. She was in bed for a year could do nothing. Finally our doctor found out she had a pheocromcytoma paragangleoma. It was removed and she is normal.
Since that time we found out her brother,sister,father and two of her children ages 3,5,13,18,52 have the gene. Brother13 had a tumor removed in Mar 2007. He’s doing great. We have to be checked every 6 months. They can be cancerous and can grow back b...Read the full article
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7 in family with pheocromacytomas
1 post • Page 1 of 1
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